Episode 3 – Why is Michael J. Fox Messing With My Head?

by admin on January 3, 2011

In this week’s episode we talk about mentally coping with RP.  A while back I watched an interview with Michael J. Fox where he talked about having Parkinson’s. He seemed so well-adjusted and almost happy that he had it. It totally messed with my head for a while. Should I be dealing with RP better? Should I be out climbing mountains or singing songs? Is there really a right way to deal with the news that you might go completely blind?

You can check out the interview we are talking about here. But please watch it after you listen to the episode.

{ 2 comments… read them below or add one }

Barbara January 25, 2011 at 11:56 pm

Thank you so much for your podcast. I am 31 and was recently diganosed with Cone-rod Dystrophy. Many of the things that you are discussing are the things that are bouncing around in my head, and have a hared time discussing with some of my friends who don’t understand what I am going through.


admin January 30, 2011 at 10:23 pm

Thank you so much. I know exactly what you mean. People try to relate or understand, but how could they. You can only understand if you are going through it. Please feel free to reach out whenever you need/want to. You don’t need to make it through this alone.


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