Podcast

Episode 25 – How To Help

by admin on February 12, 2017

This week we look to keep it lighter and talk about ways that non visually impaired people can make life a little easier for visually impaired people.  Pretty simple.  Almost feels weird writing that short of a description about it, but that’s what it is… So yeah, take a listen.

{ 0 comments }

Episode 24 – Hope and Home

by admin on January 22, 2017

After a bit of a break we are back.  Thank you so much for the letters and emails.  This week we discuss some good news we received from the eye doctor, talk about the additional stresses of buying a home when you have RP hanging over your head and struggling with enjoying now when you feel like you have to protect yourself for the future.

And here is a link to the flashlight we mentioned.  We highly recommend it.

{ 2 comments }

Episode 23 – Raging Because of the Dying of the Light

May 30, 2016

In this week’s episode we talk about being angry.  It is a natural part of losing anything, but society frowns upon it.   Is it really fair to expect a person to go through hard times and not be angry? http://media.blubrry.com/going_blind_sucks/p/www.goingblindsucks.com/wp-content/uploads/2016/05/GBS-Episode-23-Raging-Because-Of-the-Dying-Of-the-Light.mp3Podcast: Play in new window | DownloadSubscribe: iTunes | Android | RSS

Read the full article →

Episode 22 – What’s The Worst That Could Happen?

April 10, 2016

In this week’s episode we talk about how hard it can be to shake off tough vision times.  What is at the heart of being so scared and look at what is the worst that could happen?  And we look at the difference between complaining and letting others know what you are going through. http://media.blubrry.com/going_blind_sucks/p/www.goingblindsucks.com/wp-content/uploads/2016/04/GBS-Episode-22-Whats-the-Worst-That-Could-Happen.mp3Podcast: […]

Read the full article →

Episode 21 – Validation Can Hurt Too

March 20, 2016

In this week’s episode Joy tries on the RP goggles again, this time at night.  We talk about how sometimes folks validating how hard it can be can make you feel worse.  We also discuss how hard it can be taking care of someone with a disability and how hard it can be to be […]

Read the full article →

Episode 20 – What It’s Like

February 20, 2016

On this week’s episode Joy tries a pair of tunnel vision simulating goggles  and gets a better idea of what it’s really like to  have RP and Dustin explains why closets are for suckers. Here is the link for the glasses. Here is what they look like: http://media.blubrry.com/going_blind_sucks/p/www.goingblindsucks.com/wp-content/uploads/2016/02/GBS-Episode-20-What-Its-Like.mp3Podcast: Play in new window | DownloadSubscribe: iTunes […]

Read the full article →

Episode 19 – A Glimpse In To The Future

January 31, 2016

This week we discuss a potentially dangerous situation that Dustin got himself into and how it gave him a glimpse into what a possible future could be like.  We also discuss a sense of losing independence when traveling gets too hard and how you sometimes have to take care of yourself and maybe spend the […]

Read the full article →

Episode 18 – Victory in Losing?

January 10, 2016

In this week’s episode we talk about dealing with jokes about your vision loss.  We share a real story of the blind literally leading the blind.  We are baffled by some folks in the UK being mean to a visually impaired little girl.  Finally we talk about if sometimes it is okay to give in […]

Read the full article →

Episode 17 – Everything Is Getting Super Sneaky

December 6, 2015

In this week’s episode we discuss how sometimes things like the remote control move all on their own, or at least that’s the story I am going with.  We talk about why using the wheelchair symbol for people with disabilities can make people uncomfortable asking for help.  Finally we talk about how the volume on […]

Read the full article →

Episode 16 – Hitting the Next Level

November 21, 2015

After a long time away we are back.  This week we talk about hitting the next level of vision loss and how sometimes you need to mourn even when you don’t want to.  We also talk about how to navigate talking to and dealing with all this at work. http://media.blubrry.com/going_blind_sucks/p/www.goingblindsucks.com/wp-content/uploads/2015/11/GBS-Episode-16-Hitting-The-Next-Level.mp3Podcast: Play in new window | […]

Read the full article →

Episode 15 – 3 Hours Of Strobe Lights In My Eyeballs

February 28, 2012

Eye Doctors love to shoot strobe lights into your eyes to test for things.  At least mine do.  This week we talk about the joys of the ERG test (and there are many).  Plus we discuss the difference between going to a regular doctor and a research doctor.  There are definitely some trade-offs. http://media.blubrry.com/going_blind_sucks/p/goingblindsucks.com/wp-content/podcasts/Episode_15_Test_Results_and_Eye_Strobes.mp3Podcast: Play […]

Read the full article →

Episode 14 – Familiarity Is A Dirty Dirty Liar

January 31, 2012

In this week’s episode we talk about how about you can get tricked by traveling along familiar paths.  As soon as you go to the unfamiliar you discover just how little you could actually see before.  Plus I freak out a little bit about my upcoming ERG. http://media.blubrry.com/going_blind_sucks/p/goingblindsucks.com/wp-content/podcasts/Episode_14_The_Trick_Of_Knowing_Where_You_Are.mp3Podcast: Play in new window | DownloadSubscribe: iTunes […]

Read the full article →

Episode 13 – Nothing To Fear Except All The Stuff You Can’t See

December 11, 2011

On this week’s episode we talk about the good and bad reasons they had to push off my surgery, vision induced panic attacks, a place to speak with other visually impaired/blind people and fear of being singled out by bad guys when walking alone with a cane. http://media.blubrry.com/going_blind_sucks/p/goingblindsucks.com/wp-content/podcasts/Episode_13_No_Surgery_and_Panic_Attacks.mp3Podcast: Play in new window | DownloadSubscribe: iTunes […]

Read the full article →

Episode 12 – My Eyes Are Out To Get Me!

November 22, 2011

This week we discuss why my eyes totally hate me and are making it so I need surgery in the next few weeks.  Plus, proper bed side manner (or in this case improper), why sometimes it’s better to not know the answers to your questions and maybe, just maybe, a little bit of hope. http://media.blubrry.com/going_blind_sucks/p/goingblindsucks.com/wp-content/podcasts/Episode_12_Bad_Eyes_Bad_Medication.mp3Podcast: […]

Read the full article →

Episode 11 – And The Hits Just Keep On…Hitting Me In The Eyeball!

November 15, 2011

So it turns out that the loss of middle vision was a bigger deal than we thought.  This week we talk about our visit to the retina specialist to discover my right eye has taken a turn for the worse, the crazy surgery I might need to have and why my doctor is crazy excited […]

Read the full article →

Episode 10 – Losing The Middle & Testing Limits

November 13, 2011

After a long break we are back!  Thank you all so much for the kind emails and comments.  We promise to keep these coming more consistently.  This week we talk about a recent problem I have been having where I will sometimes lose my middle vision and we’ll tell you all about the new improv […]

Read the full article →

Episode 9 – VisionWalk & Why Sometime Sympathy Sucks

June 5, 2011

In this week’s episode we talk about VisionWalk NYC and why sometimes when people tries to show sympathy it can actually make a person feel way worse.  That and Joy gives me a hard time about not vacuuming enough. http://media.blubrry.com/going_blind_sucks/p/goingblindsucks.com/wp-content/podcasts/Episode_9_Vision_Walk.mp3Podcast: Play in new window | DownloadSubscribe: iTunes | Android | RSS

Read the full article →

Episode 8 – How You Gonna Not Support?

April 13, 2011

A surprising number of people are facing all the difficulties of going blind without the support of family and friends.  That sucks!  In this week’s episode we talk about why that might be, what they might not understand and we try to figure out if there is anything that can be done about it. http://media.blubrry.com/going_blind_sucks/p/www.goingblindsucks.com/wp-content/podcasts/Episode_8_Support.mp3Podcast: […]

Read the full article →

Episode 7 – Genetic Testing

March 14, 2011

In this week’s episode we talk about my most recent trip to the doctor for genetic testing regarding my RP.  We look at what the experience was like, is genetic testing worth it and eventually how it affects those around you.  Let us know what you think. http://media.blubrry.com/going_blind_sucks/p/goingblindsucks.com/wp-content/podcasts/Episode_7_Genetic_Testing.mp3Podcast: Play in new window | DownloadSubscribe: iTunes […]

Read the full article →

Episode 6 – What The Heck Do You See Anyway?

February 21, 2011

In this week’s episode we try to explain what a person with RP actually sees, we try to decide if I’m getting spoiled by people getting out-of-the-way in the subway and how sometimes the diagnoses can be too much to handle. http://media.blubrry.com/going_blind_sucks/p/goingblindsucks.com/wp-content/podcasts/Episode_6_What_do_you_see_anyway.mp3Podcast: Play in new window | DownloadSubscribe: iTunes | Android | RSS

Read the full article →

Episode 5 – I Don’t Care What’s Up Doc!

January 31, 2011

In this week’s episode we look at the emotional toll a trip to the eye doctor can have.  Is it better to live with some denial or know everything that’s going on even if it’s bad? http://media.blubrry.com/going_blind_sucks/p/www.goingblindsucks.com/wp-content/podcasts/Episode_5_Doctors_Who_Needs_Em.mp3Podcast: Play in new window | DownloadSubscribe: iTunes | Android | RSS

Read the full article →

Episode 4 – The Race Against The Dark

January 16, 2011

In this episode we talk about the possibility of going completely blind and how it affects every aspect of planning for and even thinking about the future. http://media.blubrry.com/going_blind_sucks/p/www.goingblindsucks.com/wp-content/podcasts/Episode_4_The_Race_Against_The_Dark.mp3Podcast: Play in new window | DownloadSubscribe: iTunes | Android | RSS

Read the full article →

Episode 3 – Why is Michael J. Fox Messing With My Head?

January 3, 2011

In this week’s episode we talk about mentally coping with RP.  A while back I watched an interview with Michael J. Fox where he talked about having Parkinson’s. He seemed so well-adjusted and almost happy that he had it. It totally messed with my head for a while. Should I be dealing with RP better? […]

Read the full article →

Episode 2 – Nice Cane Blindy McGee

December 23, 2010

In this week’s episode we discuss making the move to using the white cane.  Does it work for the forces of good or evil?  Does it really make you feel more independent or is that what people who can see say to make people who can’t feel better? Is everybody who sees you using one […]

Read the full article →

Episode 1 – How We Got Here

December 22, 2010

This is where it all begins.  Are you ready?  I’m not sure I am, but here we are.  In episode one we discuss the time I found out I had RP and how it led me to creating this podcast.  Enjoy. http://media.blubrry.com/going_blind_sucks/p/www.dustindaddato.com/goingblindsucks/wp-content/podcasts/gbs_episode_one_1.mp3Podcast: Play in new window | DownloadSubscribe: iTunes | Android | RSS

Read the full article →