Going Blind Sucks http://www.goingblindsucks.com A Journey Into Vision Loss Tue, 28 Dec 2021 04:12:57 +0000 en-US hourly 1 https://wordpress.org/?v=5.4.15 https://i1.wp.com/www.goingblindsucks.com/wp-content/uploads/2018/08/cropped-itunesbigger.jpg?fit=32%2C32 Going Blind Sucks http://www.goingblindsucks.com 32 32 Dustin and Joy discuss the realities of dealing with vision loss and the effect it has on those both the one losing their sight and the ones that love them. Going Blind Sucks clean episodic Going Blind Sucks dustindaddato@gmail.com dustindaddato@gmail.com (Going Blind Sucks) A Journey Into Vision Loss Going Blind Sucks http://www.goingblindsucks.com/wp-content/uploads/2018/08/itunesbigger.jpg http://www.goingblindsucks.com 16814822 Episode 25 – How You Can Help http://www.goingblindsucks.com/2018/08/24/episode-25-how-you-can-help/ Fri, 24 Aug 2018 22:54:18 +0000 http://www.goingblindsucks.com/?p=130 http://www.goingblindsucks.com/2018/08/24/episode-25-how-you-can-help/#respond http://www.goingblindsucks.com/2018/08/24/episode-25-how-you-can-help/feed/ 0 This week we look to keep it lighter and talk about ways that non visually impaired people can make life a little easier for visually impaired people.  Pretty simple.  Almost feels weird writing that short of a description about it, but that’s what it is… So yeah, take a listen. This week we look to keep it lighter and talk about ways that non visually impaired people can make life a little easier for visually impaired people.  Pretty simple.  Almost feels weird writing that short of a description about it, but that’s what it is… So yeah, take a listen.

]]> This week we look to keep it lighter and talk about ways that non visually impaired people can make life a little easier for visually impaired people.  Pretty simple.  Almost feels weird writing that short of a description about it, This week we look to keep it lighter and talk about ways that non visually impaired people can make life a little easier for visually impaired people.  Pretty simple.  Almost feels weird writing that short of a description about it, but that’s what it is… So yeah, take a listen. Going Blind Sucks clean 46:07 130 Episode 24 – Hope and Home http://www.goingblindsucks.com/2018/08/24/episode-24-hope-and-home/ Fri, 24 Aug 2018 22:52:14 +0000 http://www.goingblindsucks.com/?p=125 http://www.goingblindsucks.com/2018/08/24/episode-24-hope-and-home/#respond http://www.goingblindsucks.com/2018/08/24/episode-24-hope-and-home/feed/ 0 This week we discuss some good news we received from the eye doctor, talk about the additional stresses of buying a home when you have RP hanging over your head and struggling with enjoying now when you feel like you have to protect yourself for the future. This week we discuss some good news we received from the eye doctor, talk about the additional stresses of buying a home when you have RP hanging over your head and struggling with enjoying now when you feel like you have to protect yourself for the future.

]]> This week we discuss some good news we received from the eye doctor, talk about the additional stresses of buying a home when you have RP hanging over your head and struggling with enjoying now when you feel like you have to protect yourself for the fu... This week we discuss some good news we received from the eye doctor, talk about the additional stresses of buying a home when you have RP hanging over your head and struggling with enjoying now when you feel like you have to protect yourself for the future. Going Blind Sucks clean 56:43 125 Episode 23 – Raging Because of the Dying of the Light http://www.goingblindsucks.com/2018/08/24/episode-23-raging-because-of-the-dying-of-the-light/ Fri, 24 Aug 2018 22:41:17 +0000 http://www.goingblindsucks.com/?p=123 http://www.goingblindsucks.com/2018/08/24/episode-23-raging-because-of-the-dying-of-the-light/#respond http://www.goingblindsucks.com/2018/08/24/episode-23-raging-because-of-the-dying-of-the-light/feed/ 0 In this week’s episode we talk about being angry.  It is a natural part of losing anything, but society frowns upon it.   Is it really fair to expect a person to go through hard times and not be angry? In this week’s episode we talk about being angry.  It is a natural part of losing anything, but society frowns upon it.   Is it really fair to expect a person to go through hard times and not be angry?

]]> In this week’s episode we talk about being angry.  It is a natural part of losing anything, but society frowns upon it.   Is it really fair to expect a person to go through hard times and not be angry? In this week’s episode we talk about being angry.  It is a natural part of losing anything, but society frowns upon it.   Is it really fair to expect a person to go through hard times and not be angry? Going Blind Sucks clean 38:34 123 Episode 22 – What’s The Worst That Could Happen? http://www.goingblindsucks.com/2018/08/24/episode-22-whats-the-worst-that-could-happen/ Fri, 24 Aug 2018 22:28:31 +0000 http://www.goingblindsucks.com/?p=121 http://www.goingblindsucks.com/2018/08/24/episode-22-whats-the-worst-that-could-happen/#respond http://www.goingblindsucks.com/2018/08/24/episode-22-whats-the-worst-that-could-happen/feed/ 0 In this week’s episode we talk about how hard it can be to shake off tough vision times.  What is at the heart of being so scared and look at what is the worst that could happen?  And we look at the difference between complaining and letting others know what you are going through. In this week’s episode we talk about how hard it can be to shake off tough vision times.  What is at the heart of being so scared and look at what is the worst that could happen?  And we look at the difference between complaining and letting others know what you are going through.

]]> In this week’s episode we talk about how hard it can be to shake off tough vision times.  What is at the heart of being so scared and look at what is the worst that could happen?  And we look at the difference between complaining and letting others kno... In this week’s episode we talk about how hard it can be to shake off tough vision times.  What is at the heart of being so scared and look at what is the worst that could happen?  And we look at the difference between complaining and letting others know what you are going through. Going Blind Sucks clean 35:59 121 Episode 21 – Joy Tries RP Glasses At Night & How Validation Can Hurt Too http://www.goingblindsucks.com/2018/08/24/episode-21-joy-tries-rp-glasses-at-night-how-validation-can-hurt-too/ Fri, 24 Aug 2018 22:25:59 +0000 http://www.goingblindsucks.com/?p=119 http://www.goingblindsucks.com/2018/08/24/episode-21-joy-tries-rp-glasses-at-night-how-validation-can-hurt-too/#respond http://www.goingblindsucks.com/2018/08/24/episode-21-joy-tries-rp-glasses-at-night-how-validation-can-hurt-too/feed/ 0 In this week’s episode Joy tries on the RP goggles again, this time at night.  We talk about how sometimes folks validating how hard it can be can make you feel worse.  We also discuss how hard it can be taking care of someone with a disability and how hard it can be to be … <a href="http://www.goingblindsucks.com/2018/08/24/episode-21-joy-tries-rp-glasses-at-night-how-validation-can-hurt-too/" class="more-link">Continue reading <span class="screen-reader-text">Episode 21 – Joy Tries RP Glasses At Night & How Validation Can Hurt Too</span> <span class="meta-nav">→</span></a> In this week’s episode Joy tries on the RP goggles again, this time at night.  We talk about how sometimes folks validating how hard it can be can make you feel worse.  We also discuss how hard it can be taking care of someone with a disability and how hard it can be to be taken care of.

]]> In this week’s episode Joy tries on the RP goggles again, this time at night.  We talk about how sometimes folks validating how hard it can be can make you feel worse.  We also discuss how hard it can be taking care of someone with a disability and how... In this week’s episode Joy tries on the RP goggles again, this time at night.  We talk about how sometimes folks validating how hard it can be can make you feel worse.  We also discuss how hard it can be taking care of someone with a disability and how hard it can be to be … Continue reading Episode 21 – Joy Tries RP Glasses At Night & How Validation Can Hurt Too → Going Blind Sucks clean 56:27 119 Episode 20 – Joy Tries RP Glasses http://www.goingblindsucks.com/2018/08/24/episode-20-joy-tries-rp-glasses/ Fri, 24 Aug 2018 22:22:29 +0000 http://www.goingblindsucks.com/?p=117 http://www.goingblindsucks.com/2018/08/24/episode-20-joy-tries-rp-glasses/#respond http://www.goingblindsucks.com/2018/08/24/episode-20-joy-tries-rp-glasses/feed/ 0 On this week’s episode Joy tries a pair of tunnel vision simulating goggles  and gets a better idea of what it’s really like to  have RP and Dustin explains why closets are for suckers. Here is the link for the glasses. On this week’s episode Joy tries a pair of tunnel vision simulating goggles  and gets a better idea of what it’s really like to  have RP and Dustin explains why closets are for suckers.

Here is the link for the glasses.

]]> On this week’s episode Joy tries a pair of tunnel vision simulating goggles  and gets a better idea of what it’s really like to  have RP and Dustin explains why closets are for suckers. Here is the link for the glasses. On this week’s episode Joy tries a pair of tunnel vision simulating goggles  and gets a better idea of what it’s really like to  have RP and Dustin explains why closets are for suckers. Here is the link for the glasses. Going Blind Sucks clean 29:03 117 Episode 19 – A Glimpse In To The Future http://www.goingblindsucks.com/2018/08/24/episode-19-a-glimpse-in-to-the-future/ Fri, 24 Aug 2018 22:18:06 +0000 http://www.goingblindsucks.com/?p=115 http://www.goingblindsucks.com/2018/08/24/episode-19-a-glimpse-in-to-the-future/#respond http://www.goingblindsucks.com/2018/08/24/episode-19-a-glimpse-in-to-the-future/feed/ 0 This week we discuss a potentially dangerous situation that Dustin got himself into and how it gave him a glimpse into what a possible future could be like.  We also discuss a sense of losing independence when traveling gets too hard and how you sometimes have to take care of yourself and maybe spend the … <a href="http://www.goingblindsucks.com/2018/08/24/episode-19-a-glimpse-in-to-the-future/" class="more-link">Continue reading <span class="screen-reader-text">Episode 19 – A Glimpse In To The Future</span> <span class="meta-nav">→</span></a> This week we discuss a potentially dangerous situation that Dustin got himself into and how it gave him a glimpse into what a possible future could be like.  We also discuss a sense of losing independence when traveling gets too hard and how you sometimes have to take care of yourself and maybe spend the extra money on a taxi or Uber

]]> This week we discuss a potentially dangerous situation that Dustin got himself into and how it gave him a glimpse into what a possible future could be like.  We also discuss a sense of losing independence when traveling gets too hard and how you someti... This week we discuss a potentially dangerous situation that Dustin got himself into and how it gave him a glimpse into what a possible future could be like.  We also discuss a sense of losing independence when traveling gets too hard and how you sometimes have to take care of yourself and maybe spend the … Continue reading Episode 19 – A Glimpse In To The Future → Going Blind Sucks clean 39:26 115 Episode 18 – Victory in Losing? http://www.goingblindsucks.com/2018/08/24/episode-18-victory-in-losing/ Fri, 24 Aug 2018 20:58:31 +0000 http://www.goingblindsucks.com/?p=113 http://www.goingblindsucks.com/2018/08/24/episode-18-victory-in-losing/#respond http://www.goingblindsucks.com/2018/08/24/episode-18-victory-in-losing/feed/ 0 In this week’s episode we talk about dealing with jokes about your vision loss.  We share a real story of the blind literally leading the blind.  We are baffled by some folks in the UK being mean to a visually impaired little girl.  Finally we talk about if sometimes it is okay to give in … <a href="http://www.goingblindsucks.com/2018/08/24/episode-18-victory-in-losing/" class="more-link">Continue reading <span class="screen-reader-text">Episode 18 – Victory in Losing?</span> <span class="meta-nav">→</span></a> In this week’s episode we talk about dealing with jokes about your vision loss.  We share a real story of the blind literally leading the blind.  We are baffled by some folks in the UK being mean to a visually impaired little girl.  Finally we talk about if sometimes it is okay to give in to the fear a little bit and take care of yourself.  (hopefully the answer is yes)

]]> In this week’s episode we talk about dealing with jokes about your vision loss.  We share a real story of the blind literally leading the blind.  We are baffled by some folks in the UK being mean to a visually impaired little girl. In this week’s episode we talk about dealing with jokes about your vision loss.  We share a real story of the blind literally leading the blind.  We are baffled by some folks in the UK being mean to a visually impaired little girl.  Finally we talk about if sometimes it is okay to give in … Continue reading Episode 18 – Victory in Losing? → Going Blind Sucks clean 41:50 113 Episode 17 – Everything Is Getting Super Sneaky http://www.goingblindsucks.com/2018/08/24/episode-17-everything-is-getting-super-sneaky/ Fri, 24 Aug 2018 20:53:39 +0000 http://www.goingblindsucks.com/?p=111 http://www.goingblindsucks.com/2018/08/24/episode-17-everything-is-getting-super-sneaky/#respond http://www.goingblindsucks.com/2018/08/24/episode-17-everything-is-getting-super-sneaky/feed/ 0 In this week’s episode we discuss how sometimes things like the remote control move all on their own, or at least that’s the story I am going with.  We talk about why using the wheelchair symbol for people with disabilities can make people uncomfortable asking for help.  Finally we talk about how the volume on … <a href="http://www.goingblindsucks.com/2018/08/24/episode-17-everything-is-getting-super-sneaky/" class="more-link">Continue reading <span class="screen-reader-text">Episode 17 – Everything Is Getting Super Sneaky</span> <span class="meta-nav">→</span></a> In this week’s episode we discuss how sometimes things like the remote control move all on their own, or at least that’s the story I am going with.  We talk about why using the wheelchair symbol for people with disabilities can make people uncomfortable asking for help.  Finally we talk about how the volume on holidays can make it more stressful.

]]> In this week’s episode we discuss how sometimes things like the remote control move all on their own, or at least that’s the story I am going with.  We talk about why using the wheelchair symbol for people with disabilities can make people uncomfortabl... In this week’s episode we discuss how sometimes things like the remote control move all on their own, or at least that’s the story I am going with.  We talk about why using the wheelchair symbol for people with disabilities can make people uncomfortable asking for help.  Finally we talk about how the volume on … Continue reading Episode 17 – Everything Is Getting Super Sneaky → Going Blind Sucks clean 32:13 111 Episode 16 – Hitting the Next Level http://www.goingblindsucks.com/2018/08/24/episode-16-hitting-the-next-level/ Fri, 24 Aug 2018 20:51:26 +0000 http://www.goingblindsucks.com/?p=109 http://www.goingblindsucks.com/2018/08/24/episode-16-hitting-the-next-level/#respond http://www.goingblindsucks.com/2018/08/24/episode-16-hitting-the-next-level/feed/ 0 This week we talk about hitting the next level of vision loss and how sometimes you need to mourn even when you don’t want to.  We also talk about how to navigate talking to and dealing with all this at work. This week we talk about hitting the next level of vision loss and how sometimes you need to mourn even when you don’t want to.  We also talk about how to navigate talking to and dealing with all this at work.

]]> This week we talk about hitting the next level of vision loss and how sometimes you need to mourn even when you don’t want to.  We also talk about how to navigate talking to and dealing with all this at work. This week we talk about hitting the next level of vision loss and how sometimes you need to mourn even when you don’t want to.  We also talk about how to navigate talking to and dealing with all this at work. Going Blind Sucks clean 40:07 109 Episode 15 – 3 Hours Of Strobe Lights In My Eyeballs http://www.goingblindsucks.com/2018/08/24/episode-15-3-hours-of-strobe-lights-in-my-eyeballs/ Fri, 24 Aug 2018 20:48:18 +0000 http://www.goingblindsucks.com/?p=107 http://www.goingblindsucks.com/2018/08/24/episode-15-3-hours-of-strobe-lights-in-my-eyeballs/#respond http://www.goingblindsucks.com/2018/08/24/episode-15-3-hours-of-strobe-lights-in-my-eyeballs/feed/ 0 Eye Doctors love to shoot strobe lights into your eyes to test for things.  At least mine do.  This week we talk about the joys of the ERG test (and there are many).  Plus we discuss the difference between going to a regular doctor and a research doctor.  There are definitely some trade-offs. Eye Doctors love to shoot strobe lights into your eyes to test for things.  At least mine do.  This week we talk about the joys of the ERG test (and there are many).  Plus we discuss the difference between going to a regular doctor and a research doctor.  There are definitely some trade-offs.

]]> Eye Doctors love to shoot strobe lights into your eyes to test for things.  At least mine do.  This week we talk about the joys of the ERG test (and there are many).  Plus we discuss the difference between going to a regular doctor and a research docto... Eye Doctors love to shoot strobe lights into your eyes to test for things.  At least mine do.  This week we talk about the joys of the ERG test (and there are many).  Plus we discuss the difference between going to a regular doctor and a research doctor.  There are definitely some trade-offs. Going Blind Sucks clean 37:41 107 Episode 14 – Familiarity Is A Dirty Dirty Liar http://www.goingblindsucks.com/2018/08/24/episode-14-familiarity-is-a-dirty-dirty-liar/ Fri, 24 Aug 2018 20:46:07 +0000 http://www.goingblindsucks.com/?p=104 http://www.goingblindsucks.com/2018/08/24/episode-14-familiarity-is-a-dirty-dirty-liar/#respond http://www.goingblindsucks.com/2018/08/24/episode-14-familiarity-is-a-dirty-dirty-liar/feed/ 0 In this week’s episode we talk about how about you can get tricked by traveling along familiar paths.  As soon as you go to the unfamiliar you discover just how little you could actually see before.  Plus I freak out a little bit about my upcoming ERG. In this week’s episode we talk about how about you can get tricked by traveling along familiar paths.  As soon as you go to the unfamiliar you discover just how little you could actually see before.  Plus I freak out a little bit about my upcoming ERG.

]]> In this week’s episode we talk about how about you can get tricked by traveling along familiar paths.  As soon as you go to the unfamiliar you discover just how little you could actually see before.  Plus I freak out a little bit about my upcoming ERG. In this week’s episode we talk about how about you can get tricked by traveling along familiar paths.  As soon as you go to the unfamiliar you discover just how little you could actually see before.  Plus I freak out a little bit about my upcoming ERG. Going Blind Sucks clean 31:26 104 Episode 13 – Surgery Cancelled!!! and Panic Attacks!!! http://www.goingblindsucks.com/2018/08/24/episode-13-surgery-cancelled-and-panic-attacks/ Fri, 24 Aug 2018 20:40:50 +0000 http://www.goingblindsucks.com/?p=102 http://www.goingblindsucks.com/2018/08/24/episode-13-surgery-cancelled-and-panic-attacks/#respond http://www.goingblindsucks.com/2018/08/24/episode-13-surgery-cancelled-and-panic-attacks/feed/ 0 On this week’s episode we talk about the good and bad reasons they had to push off my surgery, vision induced panic attacks, a place to speak with other visually impaired/blind people and fear of being singled out by bad guys when walking alone with a cane On this week’s episode we talk about the good and bad reasons they had to push off my surgery, vision induced panic attacks, a place to speak with other visually impaired/blind people and fear of being singled out by bad guys when walking alone with a cane

]]> On this week’s episode we talk about the good and bad reasons they had to push off my surgery, vision induced panic attacks, a place to speak with other visually impaired/blind people and fear of being singled out by bad guys when walking alone with a ... On this week’s episode we talk about the good and bad reasons they had to push off my surgery, vision induced panic attacks, a place to speak with other visually impaired/blind people and fear of being singled out by bad guys when walking alone with a cane Going Blind Sucks clean 48:01 102 Episode 12 – My Eyes Are Out To Get Me! http://www.goingblindsucks.com/2018/08/24/episode-12-my-eyes-are-out-to-get-me/ Fri, 24 Aug 2018 19:56:15 +0000 http://www.goingblindsucks.com/?p=100 http://www.goingblindsucks.com/2018/08/24/episode-12-my-eyes-are-out-to-get-me/#respond http://www.goingblindsucks.com/2018/08/24/episode-12-my-eyes-are-out-to-get-me/feed/ 0 This week we discuss why my eyes totally hate me and are making it so I need surgery in the next few weeks.  Plus, proper bed side manner (or in this case improper), why sometimes it’s better to not know the answers to your questions and maybe, just maybe, a little bit of hope. This week we discuss why my eyes totally hate me and are making it so I need surgery in the next few weeks.  Plus, proper bed side manner (or in this case improper), why sometimes it’s better to not know the answers to your questions and maybe, just maybe, a little bit of hope.

]]> This week we discuss why my eyes totally hate me and are making it so I need surgery in the next few weeks.  Plus, proper bed side manner (or in this case improper), why sometimes it’s better to not know the answers to your questions and maybe, This week we discuss why my eyes totally hate me and are making it so I need surgery in the next few weeks.  Plus, proper bed side manner (or in this case improper), why sometimes it’s better to not know the answers to your questions and maybe, just maybe, a little bit of hope. Going Blind Sucks clean 27:00 100 Episode 11 – My Eyes Are A Medical Mystery http://www.goingblindsucks.com/2018/08/24/episode-11-my-eyes-are-a-medical-mystery/ Fri, 24 Aug 2018 19:52:54 +0000 http://www.goingblindsucks.com/?p=98 http://www.goingblindsucks.com/2018/08/24/episode-11-my-eyes-are-a-medical-mystery/#respond http://www.goingblindsucks.com/2018/08/24/episode-11-my-eyes-are-a-medical-mystery/feed/ 0 So it turns out that the loss of middle vision was a bigger deal than we thought.  This week we talk about our visit to the retina specialist to discover my right eye has taken a turn for the worse, the crazy surgery I might need to have and why my doctor is crazy excited … <a href="http://www.goingblindsucks.com/2018/08/24/episode-11-my-eyes-are-a-medical-mystery/" class="more-link">Continue reading <span class="screen-reader-text">Episode 11 – My Eyes Are A Medical Mystery</span> <span class="meta-nav">→</span></a> So it turns out that the loss of middle vision was a bigger deal than we thought.  This week we talk about our visit to the retina specialist to discover my right eye has taken a turn for the worse, the crazy surgery I might need to have and why my doctor is crazy excited to send around pictures of eyeballs.

]]> So it turns out that the loss of middle vision was a bigger deal than we thought.  This week we talk about our visit to the retina specialist to discover my right eye has taken a turn for the worse, the crazy surgery I might need to have and why my doc... So it turns out that the loss of middle vision was a bigger deal than we thought.  This week we talk about our visit to the retina specialist to discover my right eye has taken a turn for the worse, the crazy surgery I might need to have and why my doctor is crazy excited … Continue reading Episode 11 – My Eyes Are A Medical Mystery → Going Blind Sucks clean 27:00 98 Episode 10 – Losing The Middle and Testing Limits http://www.goingblindsucks.com/2018/08/24/episode-10-losing-the-middle-and-testing-limits/ Fri, 24 Aug 2018 19:44:14 +0000 http://www.goingblindsucks.com/?p=96 http://www.goingblindsucks.com/2018/08/24/episode-10-losing-the-middle-and-testing-limits/#respond http://www.goingblindsucks.com/2018/08/24/episode-10-losing-the-middle-and-testing-limits/feed/ 0 This week we talk about a recent problem I have been having where I will sometimes lose my middle vision and we’ll tell you all about the new improv comedy team I joined and how I am using it to test the limits of what I can and can’t do now. This week we talk about a recent problem I have been having where I will sometimes lose my middle vision and we’ll tell you all about the new improv comedy team I joined and how I am using it to test the limits of what I can and can’t do now.

]]> This week we talk about a recent problem I have been having where I will sometimes lose my middle vision and we’ll tell you all about the new improv comedy team I joined and how I am using it to test the limits of what I can and can’t do now. This week we talk about a recent problem I have been having where I will sometimes lose my middle vision and we’ll tell you all about the new improv comedy team I joined and how I am using it to test the limits of what I can and can’t do now. Going Blind Sucks clean 32:13 96 Episode 9 – VisionWalk NYC & How Sympathy Can Sometimes Hurt http://www.goingblindsucks.com/2018/08/24/episode-9-visionwalk-nyc-how-sympathy-can-sometimes-hurt/ Fri, 24 Aug 2018 19:39:45 +0000 http://www.goingblindsucks.com/?p=93 http://www.goingblindsucks.com/2018/08/24/episode-9-visionwalk-nyc-how-sympathy-can-sometimes-hurt/#respond http://www.goingblindsucks.com/2018/08/24/episode-9-visionwalk-nyc-how-sympathy-can-sometimes-hurt/feed/ 0 In this week’s episode we talk about VisionWalk NYC and why sometimes when people tries to show sympathy it can actually make a person feel way worse.  That and Joy gives me a hard time about not vacuuming enough. In this week’s episode we talk about VisionWalk NYC and why sometimes when people tries to show sympathy it can actually make a person feel way worse.  That and Joy gives me a hard time about not vacuuming enough.

]]> In this week’s episode we talk about VisionWalk NYC and why sometimes when people tries to show sympathy it can actually make a person feel way worse.  That and Joy gives me a hard time about not vacuuming enough. In this week’s episode we talk about VisionWalk NYC and why sometimes when people tries to show sympathy it can actually make a person feel way worse.  That and Joy gives me a hard time about not vacuuming enough. Going Blind Sucks clean 43:22 93 Episode 8 – Be Supportive Ya Jerks! http://www.goingblindsucks.com/2018/08/24/episode-be-supportive-ya-jerks/ Fri, 24 Aug 2018 17:26:43 +0000 http://www.goingblindsucks.com/?p=90 http://www.goingblindsucks.com/2018/08/24/episode-be-supportive-ya-jerks/#respond http://www.goingblindsucks.com/2018/08/24/episode-be-supportive-ya-jerks/feed/ 0 A surprising number of people are facing all the difficulties of going blind without the support of family and friends.  That sucks!  In this week’s episode we talk about why that might be, what they might not understand and we try to figure out if there is anything that can be done about it. A surprising number of people are facing all the difficulties of going blind without the support of family and friends.  That sucks!  In this week’s episode we talk about why that might be, what they might not understand and we try to figure out if there is anything that can be done about it.

]]> A surprising number of people are facing all the difficulties of going blind without the support of family and friends.  That sucks!  In this week’s episode we talk about why that might be, what they might not understand and we try to figure out if the... A surprising number of people are facing all the difficulties of going blind without the support of family and friends.  That sucks!  In this week’s episode we talk about why that might be, what they might not understand and we try to figure out if there is anything that can be done about it. Going Blind Sucks clean 45:20 90 Episode 7 – Genetic Testing And Is It Worth It http://www.goingblindsucks.com/2018/08/24/86/ Fri, 24 Aug 2018 17:22:30 +0000 http://www.goingblindsucks.com/?p=86 http://www.goingblindsucks.com/2018/08/24/86/#respond http://www.goingblindsucks.com/2018/08/24/86/feed/ 0 In this week’s episode we talk about my most recent trip to the doctor for genetic testing regarding my RP.  We look at what the experience was like, is genetic testing worth it and eventually how it affects those around you.  Let us know what you think. This one gets pretty emotional. In this week’s episode we talk about my most recent trip to the doctor for genetic testing regarding my RP.  We look at what the experience was like, is genetic testing worth it and eventually how it affects those around you.  Let us know what you think. This one gets pretty emotional.

]]> In this week’s episode we talk about my most recent trip to the doctor for genetic testing regarding my RP.  We look at what the experience was like, is genetic testing worth it and eventually how it affects those around you. In this week’s episode we talk about my most recent trip to the doctor for genetic testing regarding my RP.  We look at what the experience was like, is genetic testing worth it and eventually how it affects those around you.  Let us know what you think. This one gets pretty emotional. Going Blind Sucks clean 44:52 86 Episode 6 – What The Heck Do You See Anyway? http://www.goingblindsucks.com/2018/08/24/episode-6-what-the-heck-do-you-see-anyway/ Fri, 24 Aug 2018 17:08:27 +0000 http://www.goingblindsucks.com/?p=84 http://www.goingblindsucks.com/2018/08/24/episode-6-what-the-heck-do-you-see-anyway/#respond http://www.goingblindsucks.com/2018/08/24/episode-6-what-the-heck-do-you-see-anyway/feed/ 0 In this week’s episode we try to explain what a person with RP actually sees, we try to decide if I’m getting spoiled by people getting out-of-the-way in the subway and how sometimes the diagnoses can be too much to handle. In this week’s episode we try to explain what a person with RP actually sees, we try to decide if I’m getting spoiled by people getting out-of-the-way in the subway and how sometimes the diagnoses can be too much to handle.

]]> In this week’s episode we try to explain what a person with RP actually sees, we try to decide if I’m getting spoiled by people getting out-of-the-way in the subway and how sometimes the diagnoses can be too much to handle. In this week’s episode we try to explain what a person with RP actually sees, we try to decide if I’m getting spoiled by people getting out-of-the-way in the subway and how sometimes the diagnoses can be too much to handle. Going Blind Sucks clean 39:30 84 Episode 5 – I Don’t Care What’s Up Doc! http://www.goingblindsucks.com/2018/08/24/episode-5-i-dont-care-whats-up-doc/ Fri, 24 Aug 2018 16:59:55 +0000 http://www.goingblindsucks.com/?p=82 http://www.goingblindsucks.com/2018/08/24/episode-5-i-dont-care-whats-up-doc/#respond http://www.goingblindsucks.com/2018/08/24/episode-5-i-dont-care-whats-up-doc/feed/ 0 In this week’s episode we look at the emotional toll a trip to the eye doctor can have.  Is it better to live with some denial or know everything that’s going on even if it’s bad? In this week’s episode we look at the emotional toll a trip to the eye doctor can have.  Is it better to live with some denial or know everything that’s going on even if it’s bad?

]]> In this week’s episode we look at the emotional toll a trip to the eye doctor can have.  Is it better to live with some denial or know everything that’s going on even if it’s bad? In this week’s episode we look at the emotional toll a trip to the eye doctor can have.  Is it better to live with some denial or know everything that’s going on even if it’s bad? Going Blind Sucks clean 33:02 82 Episode 4 – The Race Against The Dark http://www.goingblindsucks.com/2018/08/24/episode-4-the-race-against-the-dark/ Fri, 24 Aug 2018 16:56:04 +0000 http://www.goingblindsucks.com/?p=80 http://www.goingblindsucks.com/2018/08/24/episode-4-the-race-against-the-dark/#respond http://www.goingblindsucks.com/2018/08/24/episode-4-the-race-against-the-dark/feed/ 0 In this episode we talk about the possibility of going completely blind and how it affects every aspect of planning for and even thinking about the future. In this episode we talk about the possibility of going completely blind and how it affects every aspect of planning for and even thinking about the future.

]]> In this episode we talk about the possibility of going completely blind and how it affects every aspect of planning for and even thinking about the future. In this episode we talk about the possibility of going completely blind and how it affects every aspect of planning for and even thinking about the future. Going Blind Sucks clean 43:46 80 Episode 3 – Michael J. Fox Is Messing With My Head http://www.goingblindsucks.com/2018/08/24/michael-j-fox-is-messing-with-my-head/ Fri, 24 Aug 2018 16:50:29 +0000 http://www.goingblindsucks.com/?p=76 http://www.goingblindsucks.com/2018/08/24/michael-j-fox-is-messing-with-my-head/#respond http://www.goingblindsucks.com/2018/08/24/michael-j-fox-is-messing-with-my-head/feed/ 0 In this week’s episode we talk about mentally coping with RP.  A while back I watched an interview with Michael J. Fox where he talked about having Parkinson’s. He seemed so well-adjusted and almost happy that he had it. It totally messed with my head for a while. Should I be dealing with RP better? … <a href="http://www.goingblindsucks.com/2018/08/24/michael-j-fox-is-messing-with-my-head/" class="more-link">Continue reading <span class="screen-reader-text">Episode 3 – Michael J. Fox Is Messing With My Head</span> <span class="meta-nav">→</span></a> In this week’s episode we talk about mentally coping with RP.  A while back I watched an interview with Michael J. Fox where he talked about having Parkinson’s. He seemed so well-adjusted and almost happy that he had it. It totally messed with my head for a while. Should I be dealing with RP better? Should I be out climbing mountains or singing songs? Is there really a right way to deal with the news that you might go completely blind?

You can check out the interview we are talking about here. But please watch it after you listen to the episode.

]]> In this week’s episode we talk about mentally coping with RP.  A while back I watched an interview with Michael J. Fox where he talked about having Parkinson’s. He seemed so well-adjusted and almost happy that he had it. In this week’s episode we talk about mentally coping with RP.  A while back I watched an interview with Michael J. Fox where he talked about having Parkinson’s. He seemed so well-adjusted and almost happy that he had it. It totally messed with my head for a while. Should I be dealing with RP better? … Continue reading Episode 3 – Michael J. Fox Is Messing With My Head → Going Blind Sucks clean 36:15 76 Episode 2 – Nice Cane Blindy McGee http://www.goingblindsucks.com/2018/08/24/episode-2-nice-cane-blindy-mcgee/ Fri, 24 Aug 2018 16:43:11 +0000 http://www.goingblindsucks.com/?p=73 http://www.goingblindsucks.com/2018/08/24/episode-2-nice-cane-blindy-mcgee/#respond http://www.goingblindsucks.com/2018/08/24/episode-2-nice-cane-blindy-mcgee/feed/ 0 In this week’s episode we discuss making the move to using the white cane. Does it work for the forces of good or evil? Does it really make you feel more independent or is that what people who can see say to make people who can’t feel better? Is everybody who sees you using one … <a href="http://www.goingblindsucks.com/2018/08/24/episode-2-nice-cane-blindy-mcgee/" class="more-link">Continue reading <span class="screen-reader-text">Episode 2 – Nice Cane Blindy McGee</span> <span class="meta-nav">→</span></a> In this week’s episode we discuss making the move to using the white cane. Does it work for the forces of good or evil? Does it really make you feel more independent or is that what people who can see say to make people who can’t feel better? In this week’s episode we discuss making the move to using the white cane. Does it work for the forces of good or evil? Does it really make you feel more independent or is that what people who can see say to make people who can’t feel better? Is everybody who sees you using one … Continue reading Episode 2 – Nice Cane Blindy McGee → Going Blind Sucks clean 33:14 73 Episode 1 – How Did We Get Here? http://www.goingblindsucks.com/2018/08/13/episode-1-how-did-we-get-here/ Mon, 13 Aug 2018 21:05:20 +0000 http://www.goingblindsucks.com/?p=22 http://www.goingblindsucks.com/2018/08/13/episode-1-how-did-we-get-here/#comments http://www.goingblindsucks.com/2018/08/13/episode-1-how-did-we-get-here/feed/ 2 This is where it all begins. Are you ready? I’m not sure I am, but here we are. In episode one we discuss the time I found out I had RP and how it led me to creating this podcast. Enjoy. This is where it all begins. Are you ready? I’m not sure I am, but here we are. In episode one we discuss the time I found out I had RP and how it led me to creating this podcast. Enjoy.

]]> This is where it all begins. Are you ready? I’m not sure I am, but here we are. In episode one we discuss the time I found out I had RP and how it led me to creating this podcast. Enjoy. This is where it all begins. Are you ready? I’m not sure I am, but here we are. In episode one we discuss the time I found out I had RP and how it led me to creating this podcast. Enjoy. Going Blind Sucks clean 25:44 22